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Caregivers' Experiences in the Transitioning from Hospital to the School Setting of Children with Special Health-care Needs

Caregivers' Experiences in the Transitioning from Hospital to the School Setting of Children with Special Health-care Needs

Recruiting
100 years and younger
All
Phase N/A

Overview

The purpose of this survey is to gather information on caregivers' perspectives and experiences with the transition process from the hospital to the school for children with special health-care needs.  The survey is anonymous, web-based survey.  Find the survey here: https://redcap.link/41o38uuc 

Description

Find the survey here: https://redcap.link/41o38uuc 

Eligibility


Caregivers of (a) children with low incidence disabilities, such as those with who qualify for services under IDEA for autism, intellectual disabilities, multiple disabilities, deaf/blindness; (b) children with special health-care needs, are those who have or are at an increased risk for a chronic, physical, medical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by other children; and (c) children between the ages of 2-22. 

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Study details
    Rett syndrome
    Preserved speech variety
    Congenital variety
    Atypical
    Cdkl5-related

5 August 2024

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