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The Canadian Open Parkinson Network

Parkinson's Disease and Parkinsonism Research Study in Canada

Recruiting
100 years and younger
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

This study investigates Parkinson's disease and related types of Parkinsonism in Canada. The purpose is to gather data to help researchers understand these conditions better. Participants will be involved for at least three years. People in the study will complete online questionnaires and have one in-person visit. During the visit, they will answer questions about their medical history and lifestyle, and they will undergo cognitive and motor assessments. Participants may also choose to donate a blood sample during this visit.

Participants will join the C-OPN Database, Biobank, and Registry. The C-OPN Database involves answering questions about personal and medical history, either online or with a coordinator. The Biobank allows participants to donate a blood sample for research, which is stored securely. The Registry sends participants notifications about future research studies. Follow-up involves completing two questionnaires every 18 months, either online or by phone, with no additional in-person visits.

  • Who can participate: People of any age living in Canada near a C-OPN Site can participate. Eligible participants include those diagnosed with Parkinson's disease, Atypical Parkinsonism, or as a 'Healthy Control'.
  • Study details: Participants will complete online questionnaires and attend one in-person visit. They may donate a blood sample, which is processed and stored securely. Participants may also receive notifications about future research studies.
  • Study timelines and visits: The study will last 3 years. The study requires 1 visit.
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Study details
    Parkinson's disease
    parkinson disease
    Parkinson's Disease
    Multiple System Atrophy
    Progressive Supranuclear Palsy
    Dementia with Lewy Bodies
    Corticobasal Degeneration
    Frontotemporal Dementia
    REM sleep behavior disorder
    Healthy Volunteer

Parkinson Canada and Brain Canada -- Funding for C-OPN was made possible by the Canada Brain Research Fund, an innovative arrangement between the Government of Canada (through Health Canada) and Brain Canada Foundation, and Parkinson Canada.

17 April 2026

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