This study investigates the barriers and facilitators to social participation for people living with progressive neurological conditions, such as Parkinson's, MS, Huntington's, or ataxia, in Wales. Participants will be involved in the study for the duration of the survey and an optional follow-up interview. The purpose is to understand what helps or hinders social and community activity participation.
Participants will fill out an online survey and may choose to participate in a follow-up interview. The study focuses on gathering insights from individuals with neurological conditions and those who support them, to improve future services and reduce loneliness.
- Who can participate: Participants must be 18 years or older and reside in Wales. Eligible individuals include those diagnosed with a progressive neurological condition, social care professionals, and representatives of community organizations.
- Study details: Participants will complete an online survey and have the option to join a follow-up interview. The study, conducted in Wales, collects data to improve services for those with neurological conditions.