Image

Exploring Barriers and Facilitators to Social Participation

Study on Social Participation in Progressive Neurological Conditions

Recruiting
18 years and older
All
Phase 0

This study investigates the barriers and facilitators to social participation for people living with progressive neurological conditions, such as Parkinson's, MS, Huntington's, or ataxia, in Wales. Participants will be involved in the study for the duration of the survey and an optional follow-up interview. The purpose is to understand what helps or hinders social and community activity participation.

Participants will fill out an online survey and may choose to participate in a follow-up interview. The study focuses on gathering insights from individuals with neurological conditions and those who support them, to improve future services and reduce loneliness.

  • Who can participate: Participants must be 18 years or older and reside in Wales. Eligible individuals include those diagnosed with a progressive neurological condition, social care professionals, and representatives of community organizations.
  • Study details: Participants will complete an online survey and have the option to join a follow-up interview. The study, conducted in Wales, collects data to improve services for those with neurological conditions.
Study details
    Parkinson's disease
    parkinson's disease
    parkinson's
    parkinson disease
    huntington's disease
    huntington's
    healthy volunteers

Health and Care Research Wales - Welsh Government

17 April 2026

Step 1 Get in touch with the nearest study center
We have submitted the contact information you provided to the research team at {{SITE_NAME}}. A copy of the message has been sent to your email for your records.
Would you like to be notified about other trials? Sign up for Patient Notification Services.
Sign up

Send a message

Enter your contact details to connect with study team


Email

View email

Phone

Phone country flag

View phone
Investigator Avatar

Primary Contact

  Other languages supported:

First name*
Last name*
Email*
Phone number*
Other language

FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
Add a private note
  • abc Select a piece of text.
  • Add notes visible only to you.
  • Send it to people through a passcode protected link.