The ActiLiège-Adult study is looking at how people with movement problems do in everyday life. They are studying 300 adults with neurological (nerve-related) or metabolic (body energy use-related) diseases. These problems can make it hard to move, like walking or using arms. The study uses a Syde® wearable device, which is like a watch worn on the wrist or ankle, to track how people move over time. The goal is to understand how well the device measures movement compared to usual tests done in doctor's offices.
- Study lasts up to two years
- Wear a special device to track movement
- Regular checkups every six months
Participating patients must be able to walk a little (10 meters), have certain conditions like Myotonic Dystrophy or Charcot-Marie-Tooth, and agree to follow all study rules. There are some exclusions, such as recent surgery or other medical issues. This study helps find new ways to measure how well treatments for movement problems work in real life.