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Quality of Life of the Patient and the Burden of the Caregiver in Progressive Supranuclear Palsy

Exploring life quality and caregiver challenges in Progressive Supranuclear Palsy.

Recruiting
18 years and older
All
Phase N/A

Progressive Supranuclear Palsy (PSP) is a rare brain disease that affects movement and behavior. It is part of a group of conditions called parkinsonian syndromes. People with PSP often have trouble with balance, eye movements, and thinking clearly. This illness can make it hard for them to swallow, which can be very serious. Unfortunately, there is no cure, and treatments only help with symptoms.

This study aims to understand how PSP affects the quality of life (QoL) for both patients and their caregivers. Quality of life refers to how comfortable and happy a person feels in their daily life. The study will also look at the stress and burden on caregivers (people who take care of patients).

  • Participants include people with PSP and their caregivers, who must be designated by the patient.
  • The study will collect data on mood, anxiety, and other social factors.
  • Findings may help improve care and support for PSP patients and their caregivers.
Study details
    Progressive Supranuclear Palsy

NCT03638505

Assistance Publique Hopitaux De Marseille

17 April 2026

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