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UPenn Observational Research Repository on Neurodegenerative Disease

Join our study on neurodegenerative diseases to help advance research!

Recruiting
18 years and older
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

The UPenn study aims to gather information on neurodegenerative diseases, which are illnesses that cause the brain and nervous system to gradually stop working properly. The study will collect lots of different types of data like medical records, brain scans, and blood samples. This data will help researchers at the University of Pennsylvania and other places understand these diseases better and develop treatments.

People who can participate include those diagnosed with a neurodegenerative disease like Alzheimer's or ALS, people with a family history of these diseases, and people without any known neurological disease to serve as a control group. Participants must be at least 18 years old and meet other health criteria to ensure safety and accuracy of the study.

  • The study is observational, meaning no treatment is provided; it's for research only.
  • Participants may need to visit the study site for tests and samples.
  • Some people may not be able to join certain parts of the study for safety reasons.
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Study details
    Frontotemporal Degeneration(FTD)
    Primary Progressive Aphasia(PPA)
    Familial Frontotemporal Lobar Degeneration (fFTLD)
    Amyotrophic Lateral Sclerosis(ALS)
    Lewy Body Disease(LBD)
    Progressive Supranuclear Palsy(PSP)
    Corticobasal Syndrome(CBS)
    Posterior Cortical Atrophy(PCA)
    Alzheimer's Disease(AD)

NCT04715399

University of Pennsylvania

17 April 2026

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FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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