**Sickle-cell Disease Registry of the GPOH**
Sickle cell disease is a genetic condition that affects the red blood cells, causing them to look like a sickle, or crescent moon. This can lead to serious health issues, but many of these can be avoided with early detection and proper treatment. The registry by the Society for Paediatric Oncology/Haematology is studying sickle cell disease in Central Europe. Their goal is to understand how the disease progresses and to improve screening and treatment guidelines.
**Key Points:**
- The study is being conducted by five university hospitals in Germany.
- Participants must live in Germany, Austria, or Switzerland and have sickle cell disease confirmed by specific tests.
- New centers treating sickle cell patients are joining the study regularly.
For more information, visit the registry's website: [Sickle Cell Information](http://www.sichelzellkrankheit.info/).
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