The study is testing a program called FACETS to help people with sickle cell disease manage their fatigue. Sickle cell disease is a condition where red blood cells are shaped like a sickle, causing pain and tiredness. The FACETS program combines techniques from cognitive-behavioral therapy (CBT), which helps change negative thinking patterns, and energy conservation strategies, which teach how to save energy during daily activities.
To join this study, you need to have sickle cell disease, speak and write French well, and agree orally to participate. You can’t join if you have severe mental health issues, other illnesses that make you tired, or are in a sickle cell crisis or hospital. You also can’t join if you are under legal protection.
- The study uses the FACETS program to help manage energy and fight fatigue.
- You must be comfortable speaking and writing in French.
- Severe psychiatric conditions or being in a sickle cell crisis excludes you from participation.