This study is about a special program called I-STRONG for SCD to help teens with sickle cell disease (SCD) manage pain. Sickle cell disease is a blood condition that can cause pain. The program combines mind and body activities to improve daily life and lessen pain. Teens and their parents will join for 9 months.
The program includes 16 online group sessions, each lasting 90 minutes, held twice a week for 8 weeks. **Participation is randomized**, meaning some start the program early while others wait about 8 months. The study lasts 36 months in total.
Key Points:
- **Duration**: 9 months of participation within a 36-month study.
- **Sessions**: 16 group telehealth sessions over 8 weeks.
- **Eligibility**: Teens aged 12-18 with SCD and their caregivers.
This study is supported by the National Institutes of Health (NIH) and their initiative to help end addiction and pain long-term.
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