**Study on Sickle Cell Disease and Genomic Research** This study focuses on understanding how parents of children with Sickle Cell Disease (SCD) feel about genomic sequencing research. *Genomic sequencing* is a way to look at a person's complete set of DNA to understand diseases better. Parents will be asked to complete surveys and interviews during regular clinic visits. The survey will take less than 30 minutes and can be done on paper or an iPad. Some parents will also have a longer interview, lasting 30-60 minutes. **Key Points:** - **Length and Visits:** Surveys take less than 30 minutes, and interviews are 30-60 minutes; both can be done during regular clinic visits. - **Compensation:** Not mentioned, but participants contribute valuable insights for future SCD research. - **Risks:** Minimal risk involved, mainly related to sharing personal opinions and knowledge. This research aims to create educational tools to help families with SCD make informed decisions about treatment options. Participation will help improve communication between families and healthcare providers.