The European Rare Blood Disorders Platform, or **ENROL**, is a project focused on collecting data about rare blood disorders, known as Rare Hematological Diseases (RHDs). These diseases are unusual and affect blood or bone marrow. ENROL collects information like demographics (who the patients are), survival rates, and how diseases are diagnosed and treated. This data helps doctors and scientists understand these rare conditions better and improve treatments. **Key Points**: - **Duration**: ENROL started in June 2020 and will continue indefinitely. - **Participants**: Anyone aged 0-100 with a diagnosis of RHDs, as per ORPHANET classification, can join. - **Compensation**: No financial compensation, but participants contribute to vital research. The project ensures that patient privacy is protected according to European laws. Data collected helps in identifying the best ways to allocate resources and plan healthcare. ENROL also supports the creation of new registries where none exist, ensuring comprehensive coverage of these diseases across Europe. Participants must be willing to give written consent to be part of this initiative.