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ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

Join our study on blood disorders to help advance medical knowledge!

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This study looks at how blood disorders, which are problems related to blood, develop over time. It is called a "longitudinal" study because it follows people for at least 15 years to see how their conditions change. The study is "observational," meaning it doesn't give any treatments, but watches and collects data. Participants are divided into groups based on their specific conditions, like Hemophilia, which is a bleeding disorder, or Thrombosis, which is a clotting disorder. Data is collected every 6 months and yearly through various modules, or smaller studies within the main study.

  • Study duration is at least 15 years.
  • Participants visit the study site every 6 months and annually.
  • No treatment is given; it's just for observation and data collection.
Study details
    Hematologic Disorder
    Bleeding Disorder
    Connective Tissue Disorder
    Hemophilia
    Thrombosis
    Von Willebrand Diseases
    Thrombophilia
    Rare Bleeding Disorder
    Platelet Disorder
    Factor IX Deficiency
    Factor VIII Deficiency
    Thalassemia
    Sickle Cell Disease

NCT04398628

American Thrombosis and Hemostasis Network

12 September 2026

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Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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